Author Archives: scarlettourwonderfullife

Why I no longer care if you call my girl a “Downs girl”

Ok, that’s not strictly true. I’d much prefer it if you called her by her name please. If you’re not sure what it is, ask her. What I mean is that I no longer waste enormous amounts of my own … Continue reading

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Why are parents of disabled children being refused the COVID vaccine?

(Before I jump on my soapbox, if you are being refused the vaccine as a carer and just want to know how to get it, skip to the end for the useful information) There is a long held public perception … Continue reading

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Children in Need

Children in Need day is almost upon us once more.  The BBC do a wonderful job of raising lots of money for “disadvantaged children” by inviting support from the public. It’s a positive, worthy cause. So why does it make … Continue reading

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Juggling

I finished work at 10.30 last night.  I expect it will be the same again tonight. I’ve spent half of today in a hospital waiting room for Scarlett’s eye clinic appointment.  This is the fourth medical appointment we have attended … Continue reading

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Noises

We were having a giggle in Tesco.  Scarlett sitting in the trolley mischievously hiding my shopping list behind her back and laughing like it was the funniest thing ever.  Licking the vegetables & grinning at people as we wheeled past. … Continue reading

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Sensory processing

When I get into bed at night I like wrap the duvet tight around and under me, curl up into a ball and rhythmically rub my feet together.  It helps me to feel safe, relax and unwind before drifting off to sleep.  … Continue reading

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where do they all come from?

A couple of years ago a friend made a “joke” on social media featuring the residents of a mental health Hospital including derogatory phrases such as “Window Licker”. I took exception, I spoke out and the backlash I received made … Continue reading

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Getting back to work

My life was very different before Scarlett. For one thing I had a career. I worked as an Accountant and Business Analyst for a number of very large well known organisations in London. I worked hard to get where I did … Continue reading

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She’s so beautiful

“She’s so beautiful, she doesn’t even look like she has Down syndrome”. I hear this a lot. It’s meant as a compliment and I take it as such because she is beautiful. And she looks like she has Down syndrome. … Continue reading

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Not that different

Like many expectant parents we took part in anti-natal classes in preparation for the birth of our daughter and as I was new to the town I was keen to meet other new Mums. At the beginning of the first … Continue reading

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