Author Archives: Musings of a SEND Mummy

Eye tests and glasses

Scarlett wears glasses. Bifocals in fact. With special frames that fit her beautiful facial bone structure. You’d be forgiven for thinking that of all the things we need to juggle and worry about for Scarlett, eye tests and glasses would … Continue reading

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Is it our turn yet?

In 2013 Ethan Saylor died at the hands of police officers. Eye witness reports state the officers held him down, restrained him with cuffs with their knee to his neck and back until he died. Before he died Ethan called … Continue reading

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Why I no longer care if you call my girl a “Downs girl”

Ok, that’s not strictly true. I’d much prefer it if you called her by her name please. If you’re not sure what it is, ask her. What I mean is that I no longer waste enormous amounts of my own … Continue reading

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Why are parents of disabled children being refused the COVID vaccine?

(Before I jump on my soapbox, if you are being refused the vaccine as a carer and just want to know how to get it, skip to the end for the useful information) There is a long held public perception … Continue reading

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Children in Need

Children in Need day is almost upon us once more.  The BBC do a wonderful job of raising lots of money for “disadvantaged children” by inviting support from the public. It’s a positive, worthy cause. So why does it make … Continue reading

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Juggling

I finished work at 10.30 last night.  I expect it will be the same again tonight. I’ve spent half of today in a hospital waiting room for Scarlett’s eye clinic appointment.  This is the fourth medical appointment we have attended … Continue reading

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Noises

We were having a giggle in Tesco.  Scarlett sitting in the trolley mischievously hiding my shopping list behind her back and laughing like it was the funniest thing ever.  Licking the vegetables & grinning at people as we wheeled past. … Continue reading

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Sensory processing

When I get into bed at night I like wrap the duvet tight around and under me, curl up into a ball and rhythmically rub my feet together.  It helps me to feel safe, relax and unwind before drifting off to sleep.  … Continue reading

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where do they all come from?

A couple of years ago a friend made a “joke” on social media featuring the residents of a mental health Hospital including derogatory phrases such as “Window Licker”. I took exception, I spoke out and the backlash I received made … Continue reading

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Getting back to work

My life was very different before Scarlett. For one thing I had a career. I worked as an Accountant and Business Analyst for a number of very large well known organisations in London. I worked hard to get where I did … Continue reading

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